Monday, October 1, 2012

Sensory Processing Disorder... is it real or are we dreaming?

The American Academy of Pediatrics recently wrote a position statement on Sensory Processing Disorders... you can read it here: on the APA Website.  You can also read the response of Lucy Jane Miller, owner and founder of the STAR Center, find that response HERE.

I find it interesting all of the discussion around SPD, especially since in the past five years I have witnessed such a large number of children and families who struggle with this disorder.  To those who struggle with this everyday it is a great disservice to deny the existence of SPD.

I decided to do a bit of research to see if I could find pediatricians on the internet who are endorsing SPD as a diagnosis and this is what I found:

Dr. Shapiro in Encino, CA says he has seen a large number of children come through his practice that he believes truly do have sensory processing disorders, with no other co-occurring disorders.

The American Occupational Therapy Association released this statement in regards to the AAP's position statement.

All in all, I think families have some important things to learn from the AAP's position statement on SPD.  It is possible, that the AAP is not always correct in their statements.  However, they do in fact bring up some important points.

 First, families should always understand the purpose and expected outcome of therapies.  If your child is participating in therapy of any type, you should understand what the goals are, what you should expect to see, an approximate date of discharge when goals are met, and at what time your child should be discharged from therapy if no progress is being made.

Second, you should always consult with your pediatrician and include your pediatrician in your therapy progress and the plan of care your therapist has laid out.  At the very least, your therapist should be providing copies of all evaluations, re-evaluations, and occasional progress notes so that your doctor can be up to date on your child's progress and the goals of therapy.

Finally, if you ever feel uncomfortable with a diagnosis anyone has given your child or the plan of treatment they recommend, seek out a second opinion.  Never participate in a program that makes you or your child uncomfortable and always do your research to find the best therapist to fit your family's needs.


In the words of Jean Ayers: "Truth, like infinity, is to be forever approached, but never reached" (Ayres, 1972, p iv).

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